APDS

Rare Disease Coalition

Founded from lived experience, we unite patients, families, clinicians, and advocates to improve diagnosis, treatment, and community support—across the U.S. and around the world.

Connecting APDS Families Worldwide

We are a patient-led coalition advancing awareness, education, and equitable access to care.

What is APDS?

APDS is a rare primary immunodeficiency that can lead to frequent infections, swollen lymph nodes, chronic inflammation, and autoimmune symptoms. Because APDS can resemble more common conditions, many families face long diagnostic journeys. Evaluation may include immune workups and genetic testing. Treatments may involve immunoglobulin therapy and targeted medicines.

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Awareness • Education • Community • Collaboration

SUPPORT GROUPS

SUPPORT GROUPS

Finding answers is easier when you have someone who understands.

Our virtual support groups connect patients and caregivers to share experiences, ask questions and find encouragement from others who are navigating APDS.

SUPPORT GROUP CALENDAR →

  • “We finally have hope and a community that understands.”

    Mother of Emma, an APDS Patient

  • “You’re not alone — there’s real help out there.”

    James, APDS Patient

  • “This organization gave us a voice. It taught me how to advocate, not just for my son, but for every family who feels lost in the rare disease world.”

    Maria, Mother of APDS Patient Daniel

  • “We went from feeling completely alone to being part of a family. That’s what this coalition gives: hope, understanding, and strength.”

    The Miller Family

  • “At first, I was scared, but now I get to help others find the same hope and direction that was given to me.”

    Lauren, APDS Patient

Real people. Real support. We’re here to help.

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